文獻綜述
失智症家庭照顧者從臨終照護到喪親哀傷歷程的 Meta 整合
The Grief Journey of Family Caregivers of Persons with Dementia from End-of-Life Care to Bereavement: A Meta-Synthesis
【摘要】
⽬的:系統評價失智症家庭照顧者從臨終照護到喪親的哀傷歷程的質性研究,為家庭照顧者臨終照護到喪親構建連續性⼲預⽅案提供依據。⽅法:電腦檢索知網、萬⽅、Web of Science、PubMed、embase、Scopus、Cochrane Library、Medline、CINAHL Ultimate、Ovid、PsycInfo ⽂獻資料庫中關於失智症喪親家庭照顧者參與患者臨終關懷體驗相關的質性研究,檢索時間為建庫至 2025 年 12 ⽉ 1 ⽇。根據澳⼤利亞喬安娜布裏格斯研究所循證衛⽣保健中⼼質性研究質量評價標準進⾏⽂獻質量評價,採⽤彙集性整合⽅法對研究結果進⾏整合。結果:共納入 6 項研究,提煉出 9 個清晰的⼦類屬,將相似類屬進⾏整合,最終形成 4 個主題類屬:1. 臨終期多重壓⼒源,包含臨終期預期性哀傷、終末護理質量缺⼜、⽂化信仰下的孝道兩難 3 個⼦類屬︔2. 死亡時刻情感衝突與在場⾏為,包含解脫與愧疚的情感交織、在場陪伴⾏為 2 個⼦類屬︔3. 喪親早期⼼理衝擊與信息缺⼜,包含喪親後的即時哀傷、⾯對死亡時準備不⾜ 2 個⼦類屬︔4. 哀傷適應與成長,包含社會⽀持助⼒⾛出喪親哀傷、哀傷適應後的成長與延續 2 個⼦類屬。結論:本研究採⽤質性研究整合分析⽅法,通過系統分析與整合照顧者從臨終照護到喪親的哀傷歷程的體驗感知,為構建連續性⽀持⽅案提供證據。
【關鍵詞】
失智症;臨終關懷;照顧者;meta 整合
Abstract:
Objective: This qualitative study systematically evaluates the grief journey experienced by family caregivers of dementia patients from the end-of-life care phase into bereavement. The findings aim to provide evidence for the development of a continuum intervention program for these caregivers throughout this period. Methods: Computer-based searches were conducted in CNKI, Wanfang, Web of Science, PubMed, Embase, Scopus, Cochrane Library, Medline, CINAHL Ultimate, Ovid for qualitative studies on the experiences of bereaved family caregivers during end-of-life care for people with dementia. The retrieval period was from database establishment to December 1, 2025. The quality of included studies was evaluated according to Joanna Briggs Institute (JBI) guidelines for qualitative research, and the results were summarized by meta-synthesis method. Results: A total of 6 studies were included and synthesized into 9 clear sub-categories; with further analysis and integrations, 4 final integrated theme categories were: 1. Multiple stressors during the terminal phase, including three sub-categories: anticipatory grief, gaps in end-oflife care quality, and filial piety dilemmas within cultural beliefs; 2. Emotional conflict and practices surrounding presence at the moment of death, including two sub-categories: the intertwining of relief and guilt, and accompaniment behaviors centered on presence; 3. Early psychological impact and information gaps in bereavement, including two sub-categories: immediate grief response following loss, and inadequate preparation for confronting death; 4. Grief adaptation and growth, including two sub-categories: social support facilitating recovery, and post-adaptation growth and continuity. Conclusion: This study employed a qualitative meta-synthesis methodology to systematically analyze and synthesize caregivers' lived experiences of grief from end-of-life care through bereavement, providing evidence to inform the development of integrated continuous support programs.
Keywords:
dementia; end-of-life; care caregivers; meta synthesis
全文下載: PDF
引用文獻:
吳⽂穎、周佳、胡⽂卉、朱明霞(2026)。失智症家庭照顧者從臨終照護到喪親哀傷歷程的 Meta 整合。澳門護理雜誌,24(2),33-41。https://doi.org/10.6729/MJN.202604_24(2).004
Wu, W., Zhou, J., Hu, W., & Zhu, M. (2026). The grief journey of family caregivers of persons with dementia from end-of-life care to bereavement: a meta-synthesis. Macau Journal of Nursing, 24(2), 33-41. https://doi.org/10.6729/MJN.202604_24(2).004

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